I agree with Mean Salley in that you will gain much more information from your physicians, and personal research. A friend of mine, who is no longer here for other reasons, was going through this right before she passed away. Her physicians first discovered it through her eye problems. She went to a neurologist, and they found lesions, which kept multiplying. She passed away before she had any major episodes, but she did say that her physicians told her that she could have times of fluctuating muscle functioning. Apparently, they told her that she could be ok for years, functioning as normal, but then hit a hard spot where she would have a harder time with muscle control for months, and then go back to her normal. I don't remember what the medication was called, but she did have to give herself a shot once or twice a week to ward off symptoms.
I'm sorry that you're going through this, and that none of us seem to have any positive information for you. I don't know enough about it, so maybe I should just keep my mouth shut. My best advice, though, from what I learned from my friend, is that when you hit a rough spot, hang in there, because things can change. I also remember her saying something about that she was told she would need to do extensive rehab during her down times.
I hope the best for you, Aralis, and am sad that you are going through this. **hugs**