My Mother Was Diagnosed With Als Today...

[SuZQZ]

I've started about write this post about 5 times. I don;t know what to say.

I understand. And thank you. I'm still numb and still trying to process it all. I walked around like a zombie at work. I just keep looking at my mom and trying not to cry. I can tell she is thinking about what is to come. How could she not. She's a R.N. She knows very well what is in store for her. I can't begin to imagine what she is thinking and how she is feeling. She has overcome so many other obstacles, and now this. I still haven't cried. I'm afraid if I allow myself to start, I won't stop. I'm just keeping focused on her and her needs and helping my daughter cope with it all.

And thank you, Kit Kat for your support. Thank you, again, everyone. You have no idea how much your words and thoughts mean to me and how much it helps to know that you are all here.

[Bernadette]

*Hugs* to you and your family. Prayers for you all!

Cherish the time you do have together.

I know you want & need to be strong, but don't forget to take care of yourself too sometimes.

[hunhee]

How in the WORLD did i miss this post.. Suzie, I'm SOOO sorry to hear about this, my thoughts will be eternally with you.

Please give your mother hugs for me (even though I don't know her), and please take some for yourself. *HUGS you close*

If you need anyone to talk to, yell at because this isn't fair, cry to or just hang out with and eat ice cream, I'm here for you. I'll PM you my number and my temp number.

[Nienna]

*hugs* It's a horrible disease, but you still have time. I'm not sure what else to say. My fiancee's grandfather had ALS, so I really can sympathize. Hang in there and stay strong.

[SuZQZ]

Thank you all. We are moving ahead. She began occupational therapy last week to try and learn to work with what little function she has. She sees her neurologist the first week of May and will get the referral for the second opinion then. A friend of mine has contacts and hooked me up with the name of the head of ALS research at U of M and she is taking on new patients still, so fingers crossed. In the meantime, my folks are getting their affairs in order and we are appreciating everyday with laughter and love. No moping is found here. She gets frustrated, but neither she nor the rest of us are wasting time moping.

[Pandora]

I can't say enough about the doctors at U of M. They are incredible. I hope they can help your mother enjoy every moment of the time she and your family have together.