Jump to content

What Are You Thinking?


StormKnight

Recommended Posts

It's cool. When you were single I did everything in my power to help you out no matter how depressed you were. Now you're in a relationship and you want a 3rd so I should stop going after this one girl (with whom I'm confident for the first time in a long time) because it will bum you and your wife out.

Link to comment
Share on other sites

It's cool. When you were single I did everything in my power to help you out no matter how depressed you were. Now you're in a relationship and you want a 3rd so I should stop going after this one girl (with whom I'm confident for the first time in a long time) because it will bum you and your wife out.

rough. :grouphug

Link to comment
Share on other sites

It is miserable 100 degree hot out and more than half the area has no electric. The gas stations that are still open look like end of the world mass hysteria, passed an Exxon yesterday that had over 50 cars lined up out into the street.

Link to comment
Share on other sites

Im wondering why companies like Mansanto are hacking the E.Coli virus and using genetic manipulation to create GMOs ("")

to better mankind's food supplies, yet we refrain from using similar technology (in vivo) to make corrective manipulations

to the dna of individuals in our special needs populace. ...I thought that was why the Human Genome Project kicked off in

the first place??

It really frustrates me that in the year 2012, this

is the closest we have come to tackling a chromosomal abnormality at it's core (in humans).

I won't accept that we don't have the technology or available funding to do something even MORE RADICAL than human flight and

space exploration.

...my 13 year old daughter Andramada* is asleep in her room, and will remain asleep only due to the medication she has been given. My child,

(nicknamed "Drama" at an early age

suffers from a rare chromosomal abnormality known as Smith Magenis Syndrome,

(a microdeletion of the p arm on the 17th chromosome). (She is cognitively at the level of a 2 year old, limited verbal, 40 IQ, and quite

accurately fits the steriotype for individuals with this disorder, including physiological (which I believe included the total anomolous pulmunary

venous return heart surgery she had at 6 months old, and her (surgically corrected) unilateral cleft lip and palatte) and psychological,

including severe self injurious behavior

and behavioral problems, an inverted circadian rhythm (which contributes to her lack/non existant (?) REM cycle /short periods of sleep.

This disorder is not heredetary (noone in my family or her mother's were 'carriers').

When she was born, when I wasn't with her at the hospital, I was in optimistic contact with geneticists, inquiring to implementing genetic therapies...

and as the years went by, as the skins of tomatoes were modified to endure shipping, my daughter's realization of a 'cure' has not come into fruition,

and my optimism has turned into burnout.

In many ways, she reminds me of Claudia, the character in an Anne Rice novel, a child who will never grow up.

Sure, it isn't fair, to her, to the kids at her special needs school, and to those whom society continues to

push under the rug... (btw this is the reason I ADORE the character TIMMY and JIMMY from South Park. IMO they are the voice of the giant

middle finger on behalf of every special needs individual whom is unable to say 'fuck you' to every POS who ever preyed upon them with

cruelty (including mockery etc) but I believe what is most unfair is the lack of progress in general in actually using our technology to

make progress. Progress like cures. ...so I can take her to see the new Disney/Pixar film and not have to worry about her punching herself in the head

and throwing popcorn at the people in front of us or throwing her shoes or causing herself to bleed everywhere and or ripping off her

diaper and getting feces and uring all over the movie theater/car etc... instead of waiting for the movie to come out on DVD... or IDK, have

a conversation with her that was more in depth than 'are you hungry?' 'wash your hands', 'please stop hurting yourself'...

*sigh* maybe if I dressed her like a tomato I could get some fucking results.

What does amaze me is that there are people out there, people like Eliza Newman (who used to be my daughter's classroom aid) and Servitor Sean, whom have dedicated

themselves to helping out the special needs community. They don't receive recognition for it, and the 'thank you's' are few and far between.

If anyone has bothered reading this, especially anyone whom is considering what career to follow, Id like to strongly suggest exploring the field of genetics.

This world needs ambitious individuals to take on this monolithic task of making genetic disorders a thing of the past.

*I misspelled her name when she was born from the original 'Andromeda', in hopes that the general populace of culture lackers would have an easier

time pronouncing it... which proved to be a waste of thought on my part (commonly pronounced "ahn drah mah dah", like the Ramada Hotel...)(followed

by 'where did you get that name from?' ...if I had a nickle for every time I heard that... *sigh* however, she does have, IMO, a pretty cool/urban

nickname: Drama (or Drama Mamma) :p ...ironically, I was unaware of the mythology associated with her name (aside from understanding her name

originated from said mythology)... 'a maiden chained'... and while the million acre fire of optimism I once had for her to be set free has withered

to embers, it still burns, and seeks the tankers of rocket fuel that only scientific research will yield.

Link to comment
Share on other sites

Im wondering why companies like Mansanto are hacking the E.Coli virus and using genetic manipulation to create GMOs ("")

Gene therapy (and the associated science, and most all science really in a sense) still has a lot of either opposition or just lack of enthusiasm politically and socially. Much of it is there and "ready" theoretically, but not technically (needs more time and most of all $$$) As you start talking specifically about editing human DNA/RNA in a way that people can understand the whole "playing god" thing really screws things up (an antique concept that I wish would die already but sadly it isn't). I've long been a "follower" lets call it of genetics and wish they would hurry things up, unfortunately even at the fast pace that science is advancing, just like many soon-to-be wonders of technology they probably wont come soon enough for us.

Your discussion about Andromeda and Claudia was very interesting (I'm familiar with both) the way you made the connections between the concepts and your child were touching.

I'm very sorry to hear about your daughter, I hope things eventually brighten for her. I have no way of imagining the frustration you must feel.

Link to comment
Share on other sites

  • TronRP locked this topic
  • TronRP unpinned and pinned this topic
  • TronRP unpinned this topic
  • TronRP pinned this topic
Guest
This topic is now closed to further replies.
  • Forum Statistics

    38.9k
    Total Topics
    820.5k
    Total Posts
  • Who's Online   0 Members, 0 Anonymous, 166 Guests (See full list)

    • There are no registered users currently online

  • Topics

  • Posts

    • I am currently floored.   FedEx did a massive 6 box delivery to the wrong address.  I had an autoship order scheduled to arrive before this past weekend.  Nothing showed up.  I contacted the order site and they had a link for the order...a photo of all my boxes thrown in the snow and up the sidewalk of a residence that was not mine.   You would think that at some point, the driver would have looked at the delivery address after they kept throwing box upon box at this location with no shelter from the elements.  They didn't even knock on the door to inform the residents that massive 65+ pound boxes were left all over their walkway.  Nope.  Just dumped them, took a photo as they were walking away and left.   I wonder what the person who found all of those misdelivered boxes must have been thinking when they saw them.  Maybe they kept everything to use, distribute or sell.  No idea.  No claim was filed on that end as of yet.   Fortunately for me, one of the sites that I ordered from, replaced everything at no extra cost.   Unfortunately, now I'm concerned for the other items yet to be delivered.   Needless to say, I'll be watching my notifications like a hawk.
    • 12:00am - Who's Online   1 Member, 0 Anonymous, 47 Guests (See full list) TronRP
    • 12:00am - Who's Online   1 Member, 0 Anonymous, 60 Guests (See full list) TronRP
    • 11:13pm - Who's Online   1 Member, 0 Anonymous, 69 Guests (See full list) TronRP
    • ~~~~~ Yeah, thank you for the check-in.   Happy to say it was all a misunderstanding.  But she pulled out her "ghetto" and that's when things went South.  I get very professional minded when I enter into situations like that because when someone starts bring the court into conversations, I'm in court 2 times a year, every year, so don't go there with me because I will get legal all over you.   She did try to change what she thought she might have said, but I had to call her on it because it's all in written text.  Then she apologized and we were able to have a decent conversation.   I know I joke about me talking so much that people don't hear what I say except for keywords that they are looking for, but that is exactly what happened here.  She heard "payment", "money" and "help out".  It was crazy.  I literally had to have the entire conversation all over again, but I definitely condensed it to only address those 3 words.   Things are back on track, but I emphasized that if she every needed clarification for anything, please say something first instead of jumping to conclusions, then questioning that conclusion, then answering that conclusion, then getting upset at the answer and taking it out on someone who doesn't have a clue what the San Juan Hill just happened.   But this is exactly the reason I do everything with a paper trail. 
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.